my pink toes

wonder woman Alas, I am so very
very far from her greatness.
I do have cool Grandma
undies like she does, though!

I gave up “my” time on Friday to make a birthday cake for my beloved now-7 year old. He requested a Lego cake, and I wanted to oblige. My creation won’t win any awards, but I’m quite proud of it. He was thrilled, even though he doesn’t eat frosting! (I made him some extra cupcakes without frosting).

Saturday and Sunday were full to the brim with celebrations, and unfortunately, with pain. So much pain, that I was unable to read the much-anticipated Harry Potter*. I was able to sleep 5 hours on Sunday afternoon, but I was so too far gone by then to stave off the inevitable raging flare.

I’ve been in so much pain this last week, and it continues today. I had to take 3 Vic0din just to make it through the day yesterday. I’ve had 2 already today, and will need another to make it through the evening of Lego shopping I have promised Henry. My entire body is inflamed, and I have a low-grade fever. Everything hurts. Everything. I’m exhausted and completely on edge emotionally and physically.

The fibromyalgia is becoming a bigger deal in my life. Not just because it seems to be getting worse, although that may be contributing to it. But mostly because I am learning (slowly, badly) to take care of myself. I have lived in denial for a long time, and it has caught up to me. One of the reasons I held so tightly to the denial is fear: primarily fear that people only like me for what I can do – that I have to be SuperLeah for anyone to like me, even a little bit. I have to be a great hostess, help everyone out, befriend everyone, throw great parties, send the most thoughtful thank-you notes, have the most positive attitude, exude confidence, be the most secure in my faith, be the most amazing mother and the most self-less wife, etc. It’s been very hard to let go of this fear and free-fall through unfamiliar air, hoping I’ll land okay – bumped and bruised, but hopefully intact.

It’s been hard. I know I’ve frustrated quite a few people. I frustrate myself. It’s so hard not to try grab back hold of the SuperLeah idea, but my cape is torn beyond recognition and my superpowers are now completely depleted. I have to hold on to what I have and pray that it’s going to be enough. I am very blessed. I have a great church, small group, husband, therapist and some key friends. I also know that I have been putting stress on the husband and key friends’ relationships. I have worried about the fallout. I continue to worry. I’ve had lots of reassurance along with a few emotional blows.

Yesterday I met up with a group of women that I had not seen in a long time. These playgroup moms were very important to me during Henry’s first four years. They also knew me when I was still in denial. One of them, in particular, had every right to be angry with me. We had kept in touch for quite a while, through her back surgery and other issues, but I had not been in contact for almost 10 months, during which her father died and her husband had a heart attack. I had thought about her a lot, but did I call? No. Did I email? Yes, but only once or twice. Did I send a card? Only at Christmas. Was I a lame friend? Absolutely. I begged her forgiveness, and she acknowledged her anger at me. But she also showed me incredible grace. I know I injured her, but I also know she chose to forgive.

I finally got time to write today (after waiting an hour for a blood test) and opened my laptop to a terse email from a different friend about how I have let her down for the last time and she may never talk with me again. I worried that my letting go and surrendering to the freefall would lead to situations like this. I worried that taking care of myself would cost me relationships. I have lost my first friend due to my inadequacies. I’m pretty sure she won’t be the last. It terrifies me, but I fear it’s the truth.

I know I am not doing this well. I am learning, and am learning badly. I try to take care of myself and help other people at the same time, and it rarely works out. I am still learning balance, but sometimes I leave others in the lurch. Some forgive me and show grace, teaching me how to hope and love and do this better. Some do not. I need to learn from both situations.

I am doing this badly, but I don’t know how else to do it.

I have chosen to take care of myself and put my myself and my family first. This is incredibly stressful on many levels. Many people don’t understand. Someone quite close to me thinks that having children is the most selfish thing one can do. In my case, I do struggle with that. I can’t even manage to raise my children without help. What made me think I could do this? I am a huge drain on everyone around me. I worry that I am not enough – that everyone thinks I am not worth the effort and would be better off without me. What could I possibly have to offer?

And my faith is taking a beating. I’m trying to turn to God for refuge in this time of stress, but I’m worrying that He doesn’t think I’m Enough either. What could I possibly have to offer God at this moment? I can’t fathom. I can’t see what I have to offer to anyone.

I’m just plugging along, one foot slowly in front of the other - hoping, dreaming, wishing and praying for the fog to lift, for things to make more sense, for me to feel loved and at peace. I know that eventually, things will work out better. The dust will settle enough for me to get used to my new surroundings. The freefall will end and I’ll be able to discover who I am and what my value is. Faith, hope, and dogged determination is all I have. Looking into my children’s eyes, I know it will be worth it. Eventually.

*And yes, I did finally manage to read the last (sniff) Harry Potter – I finished it last night. I had to re-read huge sections of it as I went along, realizing that the narcotics had blurred important parts – the benefit was that it made it last longer. And I’ll bet I’ll pick up even more upon the inevitable re-readings. Yes, I thought it ended well – and more importantly – correctly. Does reading this make me selfish? Probably. But I’m in too much pain and am too exhausted to process that right now. If only St. Mungo’s could mend me…